The keys to life….
January 6, 2010 on 9:38 am | In Beverly Beckham articles | No CommentsI just love articles written by Beverly Beckham, especially her articles about her grandaughter, Lucy who has Down syndrome. This article isn’t about Lucy, but I really enjoyed it and thought I would share it with everyone.
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Songs: They’re the key to life
By Beverly Beckham, Globe Columnist | January 3, 2010
I had an idea a while ago about writing a book called “Everything I Know I Learned from My Garden,’’ full of pithy if not original insights. Growth can’t be rushed, for one, or maturity counts, and it really does matter where you’re planted.
I scribbled some notes, but got predictably sidetracked. Then winter came and my garden died. (I know: It’s not really dead. Which is another life lesson: Things are not always what they seem.)
Still, I abandoned the project.
Now I’m glad I did because it struck me recently that everything I know I learned not from my garden but from songs. Old songs, new songs, Broadway songs, kids’ songs. Ballads. Rap. Rounds. They’re all packed with life lessons.
“Just what makes that little old ant think he’ll move that rubber tree plant; anyone knows an ant can’t move a rubber tree plant, but he’s got high hopes.’’
“If you’re worried and you can’t sleep, just count your blessings instead of sheep.’’
“Row, row, row your boat.’’ “A spoonful of sugar helps the medicine go down.’’ “A dream is a wish your heart makes.’’ “I can fly! I can fly! I can fly!’’
All incredible motivators.
There are songs of affirmation:
“What a difference a day makes.’’
“Whatever will be, will be.’’
“Little things mean a lot.’’
“Time heals everything.’’
“There will never be another you.’’
“Give a little whistle and always let your conscience be your guide.’’
And injunctions:
“Tap your troubles away.’’
“Think happy thoughts.’’
“Make someone happy.’’
“You gotta have heart.’’
“Big girls don’t cry.’’
“Give ‘em the old razzle dazzle.’’
“Wrap your troubles in dreams and dream all your troubles away.’’
Some songs are wise:
“Love changes everything.’’
“There’s no place like home.’’
“You can’t get a man with a gun.’’
“Try a little tenderness.’’
“The best things in life are free.’’
“You’re never fully dressed without a smile.’’
And some are invitations:
“Life is a cabaret, old chum, come to the cabaret.’’
“Climb every mountain, ford every stream, follow every rainbow, ’til you find your dream.’’
Want pure nostalgia? There’s this.
“The way you wear your hat
The way you sip your tea
The memory of all that
No, no, they can’t take that away from me.’’
Want sad?
“Pretend you’re happy when you’re blue,’’ is sad.
“It’s a hard-knock life,’’ is true, but so is its antithesis: “And I think to myself, what a wonderful world.’’
Music, like a garden, is full of contrast.
“Smile though your heart is aching.’’
“The best is yet to come.’’
“The sun’ll come out tomorrow.’’
“Breaking up is hard to do.’’
“In the wee small hours of the morning, that’s the time you miss him most of all.’’
“It’s a party in the USA.’’
“It’s my party and I’ll cry if I want to.’’
“Some days are diamonds. Some days are stones.’’
Songs and life lessons, all.
Canton resident Beverly Beckham can be reached at bevbeckham@aol.com.
Gotta love Beverly Beckham!
September 21, 2009 on 11:52 am | In Down syndrome, Articles, pre-natal testing, Beverly Beckham articles | No CommentsI just love articles by Beverly Beckham!!!
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Seen through loving eyes
By Beverly Beckham, Globe Columnist | September 20, 2009
My granddaughter Lucy is six years old and is part of a class of people that is quietly being eliminated in my country. She has Down syndrome, a genetic condition that frightens so many women that 92 percent of those who learn they are carrying babies with it choose to abort.
Dr. Brian Skotko, a genetics fellow at Children’s Hospital, fears this number will rise. Prenatal tests are invasive, carry a risk to the fetus, and are given in the second trimester, so many women choose not to have them. But a simple new and non-invasive blood test, to be given early in a woman’s pregnancy, is coming, perhaps as early as next year.
“As new tests become available, will babies with Down syndrome slowly disappear?’’ Skotko ponders in a soon-to-be-published article in the Archives of Disease in Childhood, (a British medical journal) available online now.
It’s easy to understand why parents fear a diagnosis of Down syndrome. You Google definitions of it, and even now archaic words and misinformation pop up. It’s the same in doctors’ offices. Pregnant women are told only the negatives. Old stereotypes linger.
My granddaughter cannot do all the things that typical kids can. She doesn’t come home from school full of stories. They may be in her head, but we can’t see in there. She speaks and sometimes we don’t understand. She can’t make a teddy bear with paper and glue, not without help. She can’t understand why her grandfather would rather watch baseball than Shirley Temple. She does not have the same skills and abilities that her 5-year-old cousin Adam has.
But Adam doesn’t have the skills and abilities she has. He doesn’t always enter a room and greet everyone with a big smile. He doesn’t always leap to his feet and race to his father when he comes home from work. He can’t sit for hours in a fancy restaurant or through a long movie. And he doesn’t know instinctively when someone is sad and needs a hug.
He can field a ball and she can work a room. He sings a whole John Denver song, and she sits and applauds.
This is what doctors don’t tell mothers having babies with Down syndrome, that you will see in your child amazing things that you won’t see in ordinary children.
Of course, parents want healthy kids. And some get them. But children get sick. They get in accidents. They lose limbs. They suddenly stop talking one day.
Children in wheelchairs, on ventilators and crutches? Children hooked up to IVs getting chemotherapy? People on waiting lists for transplants? People with chronic diseases. Soldiers changed by war. Civilians changed by an accident.
They weren’t born this way. But if there were a test that showed their future - that showed diabetes and cancer and autism and muscular dystrophy and mental illness and depression and alcoholism - would women take it? And seeing what would be, would they choose to abort?
Last week we took Lucy to Davis’ Farmland in Sterling, where we played with the animals. Then we went to a wine tasting at Nashoba Valley, where Lucy drank juice and shared our cheese and crackers and enjoyed the day.
All kids with Down syndrome are not like this. But this is Lucy. She makes me notice the ordinariness of people who don’t have it.
In the play “Cabaret,’’ set in Berlin as the Nazis rise to power, a man loves a woman he’s not supposed to because he’s Christian and she’s Jewish. He tries to explain his love to his friends. And because “Cabaret’’ is a musical, his explanation is a song.
“If you could see her through my eyes, you wouldn’t wonder at all. If you could see her through my eyes, I guarantee you would fall, like I did. . .’’
Like I did. Like Lucy’s mother and father did. Like all the people who know Lucy and people like her did. Like the world would, too, if only given the chance.
-The Massachusetts Down Syndrome Congress, which seeks to ensure that people with the condition are valued and given the opportunities to pursue fulfilling lives, is holding its annual Buddy Walk on Sunday, Oct. 11. For more information go to: mdsc.kintera.org/buddywalk2009 Canton resident Beverly Beckham can be reached at bevbeckham@aol.com.
Counting a Little Blessing
June 14, 2009 on 2:24 pm | In Down syndrome, Articles, Beverly Beckham articles | No CommentsAnother wonderful article by grandmother, Beverly Beckham about her granddaughter, Lucy.
Counting a little blessing
By Beverly Beckham | June 14, 2009
Blessed is a word I find myself saying a lot lately. How blessed I am. How blessed my family is. How blessed we are to have Lucy.
Six years ago, I didn’t feel blessed. Lucy, my first grandchild, my daughter’s child, was 12 hours old when we learned she had Down syndrome. We wept. Three days later, we were told she had holes in her heart and would need surgery. We took her home and fed her and held her and rocked her and sang to her. And we prayed.
Fear consumed us then. We worried about her health. Were her lips blue? Was she sweating from exertion or was the room too warm? We worried about her future. Would she walk? Would she talk? We worried about our future. Would the stress of all this worry pull our family apart?
Heart surgery. And we almost lost her. Then more heart surgery and, again, a crisis. Blessed? The word never crossed my mind.
Then slowly things got better.
If only life were like a book and you could peek ahead. Lucy will be 6 on Saturday. If only, when she was new and we were scared, we could have had a glimpse of Lucy now.
When she was little, 2, 3, maybe even 4, she used to practice talking in her crib. Away from everyone, she would chatter, naming things, her stuffed animals, the toys in her room, the people in her books and in her life. Over and over, she’d say Mommy, Daddy, Adam, Mimi, cow, duck, cat, and every other word she knew.
She was quieter in front of people, shy until she got a word right.
It took time, but she got them right. This is Lucy. Give her time and she’ll amaze you.
These are things about her now that I never could have imagined then: that her favorite movie would be “Gone With the Wind.” That she would know all the characters, except for Sue Ellen. (”Who’s that?” she asks every time Scarlet’s sister comes on the screen. Poor Sue Ellen - forgettable even to a child.)
That she would always race to the door to greet her mom and dad, dropping whatever it is she is doing to hug them, to tell them with her smile and her open arms - even if they’ve been gone just 10 minutes - how glad she is to see them.
That she would love the “peace be with you” moment in church. That she would say “peace,” reach for hand after hand, look into a stranger’s eyes and smile. And that even the most reluctant hand-shaker would smile back.
And that she would love our neighbor Al, and seek him out in his yard, in his house, in my house. “Al! Al!” Katherine, his wife, the one who makes her favorite cookies, but Al the one who has her heart.
It’s not all roses of course, with Lucy. She doesn’t understand that the street is dangerous and that you can’t sit down when you’re an outfielder and that the DVD player sometimes sticks and whining doesn’t unstick it.
In these ways she is a lot like a typical 6-year-old.
But she is not typical.
It takes her longer to learn and longer to understand. But when she does? It’s like the circus has come to town. She says a whole sentence “I want to have a banana, please.” She puts together a puzzle. She matches colors and shapes. She climbs to the top of the slide, sits, and glides down. She stands at the window and reenacts a scene from “The Little Princess.” The Wallendas doing headstands on a tightrope couldn’t thrill us more.
Sometimes when I watch children her age do things effortlessly, my heart aches a little. But then Lucy will saunter by, climb on my lap, or say hi and keep on walking, and I will be bowled over by her presence, by the amazing gift of her.
How blessed I am. How lucky to be loving her. And how easy she is to love.
Canton resident Beverly Beckham can be reached at bevbeckham@aol.com.
Exceptional Jewelry made by Exceptional People!
May 25, 2009 on 8:00 am | In Down syndrome, Shopping, Jewelry, Beverly Beckham articles | 1 CommentFYI- to all my CDSC families, it’s looking like we’re going to have this organization at our convention this year in November!
An exceptional crew of jewelry makers
By Beverly Beckham, May 24, 2009
Work is more than a job for Cheryl Bleakney.
People sell things every day, and some even like what they sell. But Bleakney is passionate, and not just about the quality of the merchandise she takes with her everywhere she goes, but about the people who make the products and the facility that supports their unique endeavor.
Bleakney sells jewelry, but not the kind you see at every shopping mall. What she carries in her car, and takes to schools and conferences and fund-raisers and walks and churches and anywhere people gather is “exceptional jewelry” made by “exceptional people,” beautiful works of art designed to remind a wearer of someone beautiful in their lives.
True Meaning Jewelry is custom-made and skillfully handcrafted in a workshop in Hanson. Sterling silver and Swarovski beads are strung together one by one into bracelets representing a cause: autism, breast cancer, diabetes, heart disease, Special Olympics, Down syndrome. And anything else a customer might request.
The company is just a year old, and small, with fewer than a dozen workers. But awareness jewelry is a big seller these days, bracelets the new bumper sticker, people wanting other people to know what they care about. So if you Google awareness jewelry, hundreds of causes come up.
This is good news for True Meaning Jewelry and great potential for growth, because who they are and what they do is unique. The artisans who create every custom-made piece aren’t just artists, but the very people they’re creating the jewelry to honor. All of them have some intellectual and physical challenges. One is visually impaired and needs a magnifying glass to see. Some have Down syndrome and have trouble with fine motor skills. All need direction and accommodations, yet here they are working diligently and earnestly because they know what they’re doing is important. And they take pride in this.
Here’s what usually happens in such a workplace: An artist designs and makes a piece of jewelry, sells it, donates a percentage of the sale to the cause the jewelry represents. And the rest is profit.
Here’s what happens at True Meaning Jewelry: Bleakney designs the jewelry and the artisans make it. They sell it and donate a percentage of the sale to the cause the jewelry represents. But the rest is their collective salary, their personal pride and their independence.
“Last year at this time, we were making jewelry for another company,” said Bleakney, a resident of Kingston. “And I thought, ‘Why can’t we make our own jewelry and do it for awareness? Who better to do this than these men and women? Why can’t we start our own little business?’ ”
Bleakney went to her bosses at New England Village, a nonprofit residential community in Pembroke, which also runs the workshop in Hanson, and presented her plan. The village’s stated mission is to help “adults with intellectual and developmental disabilities . . . lead dignified and enriching lives filled with opportunities for growth and friendship.” This was definitely an opportunity for growth and friendship. They gave Bleakney the thumbs up.
Bleakney painted a vacant room, made country cottage curtains, and created a cozy, artistic, comfortable environment for the new artists.
And so it began.
The goal now, she said, is to create more work. “We have 10 young people working. I would like to see 20. I have to advocate. I have to get the word out. Because I really have to keep these guys working.”
They’re home grown. They love making jewelry. They’re involved and engaged and not easily distracted, even when a visitor is looking over their shoulders. They stick to the task.
Their jewelry comes packaged in a silky pouch with silver stars and a thank-you card from the artisans.
“Who better to benefit from awareness jewelry?” Bleakney asks.
For more information about True Meaning Jewelry, visit log on to www.newenglandvillage.org/truemeaningweb/truemeaningjewelry_home.html. Canton resident Beverly Beckham can be reached at bevbeckham@aol.com.
Beverly Beckham does it again!!
March 2, 2009 on 9:07 pm | In Down syndrome, Articles, Beverly Beckham articles | No CommentsSmiles, songs for a granddaughter who is just right
By Beverly Beckham
March 1, 2009
Five hours in a car. It’s a long time for a 5-year-old to be confined. But Lucy never complained. Not a tear. Not a tantrum. Not even a pout.
My granddaughter was happy, listening to Rodgers and Hammerstein’s “Cinderella,” and singing along. She ate chicken fingers in a nice restaurant overlooking the water, then she was back in her car seat, singing again.
She and her mother and I were on our way home from New York City. We had taken her to see her 19-month-old cousin. We had been to parks and museums, bookstores, and toy stores. We had walked and shopped and eaten and played.
I was thinking about this, about what a great kid she is, when I walked into my house and read the cover of the Boston Globe Magazine, which had come while I was away: “Pregnancy and Down syndrome; the agonizing decisions.” Lucy has Down syndrome, so I sat and read it.
I wish I hadn’t. Its negativity made me question reality. Did I invent this perfect week with my grandchild? Lucy’s smiles and her songs. Lucy reading books and running through Central Park, raising her glass of milk and saying “cheers.” Lucy remembering to say “please” and “thank you” to every person who held a door or brought her food or handed her a ticket.
The article was about two families who were told that their unborn babies had a 1-in-6 chance of being born with Down syndrome. One couple continued the pregnancy, the other aborted. As background, the author, Dr. Adam Wolfberg, wrote that Down syndrome “results in mental retardation and often a host of medical problems.” That prospective parents use early prenatal testing to identify a baby with the syndrome “so that they can prepare to raise a child who will have profound medical, cognitive, and behavioral challenges.” And that a determination of Down syndrome is “like a lottery no one wants to win.”
The words Wolfberg chose to use stung not just because they make sweeping generalizations. But because, before Lucy, I would have believed them.
You see things one way when you’re on the outside looking in. But when you’re on the inside looking out? All you see is a child.
Our family had hoped for a baby without extra challenges. Doesn’t everyone? When Lucy was born, she wasn’t healthy. She had holes in her heart. She needed surgery. And she had Down syndrome.
Negative words decimated us. You play them over and over in your head and you worry and watch and wait. And you miss so much that is good because you are a wreck anticipating disaster.
And then you stop worrying. You stop projecting and imagining and you look at this child in your arms, whom the world deems inferior, and you think how wrong the world is. And how perfectly right she is.
Lucy listens as Julie Andrews sings. Then she belts out in her raspy child’s voice what is true for Cinderella but even truer for all children like her. “Impossible things are happening every day.”
Beverly Beckham can be reached at bevbeckham@aol.com.
Beverly Beckham’s newest article
July 21, 2008 on 10:02 pm | In Down syndrome, Articles, Books, Beverly Beckham articles | 4 CommentsI always enjoy reading Beverly Beckham’s articles!!!
She wasn’t the prettiest child in the room, because they were all the prettiest, babies still, not one of them over 3, flawless skin, bright eyes, shy, sweet smiles. But my daughter and I were drawn to this particular baby because she reminded us of Lucy, my daughter’s little girl, with her sweet round face and her light wispy hair and the thin pale line on her breastbone that told us she had had heart surgery, too.
“How old is she?” we asked her mother.
“Six months,” the mother said, and we gushed and said something like, “So cute.” And “Lucy is 5 now. Hard to believe.”
“What’s your baby’s name?” my daughter asked.
The mother said Grace. And we echoed the word, which means blessing, and it hung in the air, a name so weighted with truth.
Then we sat down, my daughter and I on one side of the room, Grace and her mother on the other.
And the speakers began their program.
This happened a week ago at the Seaport Hotel in Boston, where we were attending the National Down Syndrome Congress. We had signed up for the “New Parent’s Survival Guide” not because we are new parents, though my daughter is new enough, but because we wanted to meet the two speakers.
Kathryn Lynard Soper lives in Utah, has seven children, and contributed to and edited the book. “Gifts - Mothers Reflect on How Children with Down Syndrome Enrich Their Lives.” Jennifer Graf Groneberg lives in Montana, has three children, and has just published “Road Map to Holland - How I Found My Way Through My Son’s First Two Years With Down Syndrome.” Both women have blogs. Both are prolific writers. And both have sons with Down syndrome.
When Soper’s son Thomas was born, there wasn’t a book for her to read that told her what she wanted to know. There were guides and charts and medical treatises and a few stories about choosing to have a child with Down sydrome, but not a single book in which mothers talked about their experiences, their feelings, their lives, and their children. Soper wrote about her life with Thomas in her blog, and hundreds of mothers wrote back. And, in time, hundreds of stories were shared.
Soper collected and organized them and sent them to Woodbine House, a publisher specializing in special needs, and the stories got published, beautiful essays interspersed with photographs of beautiful children. Though the stories address fear and worry and preconceptions and misconceptions, the common denominator, what holds them together, is love.
That’s what no one tells you when you have a child who is not perfect. That love changes everything. That love propels you from the bed to the cradle in the middle of the night. That love is why you sing even when you’re bone tired. That love is what fills your heart with pride and your eyes with tears, sometimes many times. That love is the reason all parents, even parents whose kids have challenges that seem burdensome and overwhelming to everyone else, say with certainty, “I wouldn’t trade my child for any one else’s.”
Love is what the tests can’t measure.
When Lucy was born just five years ago, “Gifts” and “Road Map to Holland” hadn’t been published. Someone gave us “When Bad Things Happen to Good People.” Someone meant well, but Lucy was never a bad thing.
Sometime in the middle of the 90-minute workshop, when Soper paused and asked for questions, Grace’s mother raised her hand, stood up and thanked Soper for compiling her book. Then she went on to explain how this little collection of simple stories written by 63 ordinary women saved her baby Grace’s life.
“We had a week to decide,” she said. Her test had come back positive, the doctors were somber, the literature bleak. And every bit of life experience she and her husband had was limited to feeling sorry for and frightened by every disabled person they had seen but didn’t know.
“Gifts” took them beyond the stereotypes and showed them that “disabled” is a loaded and omissive word with all the bad left in and all the good left out.
“Road Map to Holland” does the same thing.
Two books of love stories. Two books that are already changing the way people think.
Beverly Beckham can be reached at bevbeckham@aol.com. ![]()
Thank goodness we have Beverly Beckham!
June 24, 2008 on 11:33 am | In Down syndrome, Articles, Advocacy, Beverly Beckham articles | 2 CommentsLoved and cherished, she thrives
By Beverly Beckham, The Boston Globe
June 22, 2008
I strap her into her car seat and tell her that we are going to the doctor. And she smiles at me and says, “Mimi’s house.”
“First we’re going to the doctor, Lucy, then you can come to my house, OK?” And then we sing, in big, booming voices, “Police officers, firefighters, a doctor or a nurse. They help me if I’m hurt. They help me if I’m hurt!” over and over until we arrive at Norwood Hospital.
Lucy, my granddaughter, is almost 5, but she was only 3 days old when we came here for the first time - the entire family, her mother and father, aunts and uncles, her grandfather and I. “She has three holes in her heart,” Dr. Geggel told us. It’s not unusual for children with Down syndrome to have holes in their heart, he explained. Sometimes the holes close on their own. Sometimes we have to operate. It sounds worse than it is. Don’t worry. We do these operations all the time, he told us. Calm and kind and quietly caring, he was then and continues to be.
We came here regularly, to this satellite of Children’s Hospital, to have Lucy tested. She was so tiny then, the smallest of babies, poked and made to lie still, constantly being assessed and evaluated.
No one could get her blood pressure, the littlest cuff too big for her arm. But even if a cuff had fit, the pressure wouldn’t have registered because it was that weak, because her heart was that compromised.
I took her to a healing priest when she was 4 weeks old and he held her up like a trophy and announced that he had cured her and a church full of people clapped. But he was wrong. Lucy had surgery at Boston’s Children’s Hospital a month later and there were complications. And when we got her back, she still wasn’t cured.
When she was 4 months old she had to have more surgery to fix what went wrong. Now, every June, just before her birthday, we come to Norwood to have her tested. Continue reading Thank goodness we have Beverly Beckham!…
A new Beverly Beckham article
March 3, 2008 on 6:17 pm | In Down syndrome, Articles, Beverly Beckham articles | 2 CommentsAn ambassador against fear
This is what “internationally renowned” Sherman J. Silber, M.D., writes in his “completely revised and updated” book “How to Get Pregnant,” published by Little Brown and Co. last August: “The biggest fear of most pregnant women is that their child will be abnormal, and the most common abnormality they worry about is Down syndrome. . . . These children are severely retarded mentally, and they usually die before their thirtieth birthday.”
He also writes: “We can prevent couples from having to face the horror of giving birth to children with otherwise devastating genetic defects such as Down syndrome, cystic fibrosis, muscular dystrophy, mental retardation, etc., that terrify every woman who ever gets pregnant.”
Silber’s book has sold more than 400,000 copies. It’s been translated into Spanish, German, and Russian. He’s been on “Oprah,” “Good Morning America,” and NPR.
Silber may be popular, but he is wrong.
“Most people with Down syndrome have IQs that fall in the mild to moderate range of retardation. Some are so mildly affected that they live independently and are gainfully employed,” says the National Institutes of Health, the federal agency that speaks with authority on this issue.
“Most of the health problems associated with Down syndrome can be treated, and life expectancy is now about 55 years,” says the March of Dimes.
And giving birth to a child with Down syndrome or cystic fibrosis or muscular dystrophy or mental retardation is not a “horror.” Not according to every woman I know who has given birth to a child with these disabilities.
It takes a long time to alter public perception, to dispel these untruths. I know. My granddaughter has Down syndrome. Continue reading A new Beverly Beckham article…
Beverly Beckham
August 21, 2007 on 12:15 pm | In Down syndrome, Articles, Beverly Beckham articles | 1 CommentFor those of you who aren’t famliar with Beverly Beckham’s articles featured in The Boston Globe, Beverly is a grandmother to a little girl, Lucy who happens to have a little something extra just like Joey. I had posted the August 12 article, last week, but I wanted to share the other articles that Beverly has written with those of you who haven’t read them yet.
Victories, Sweet, and Simple. August 12, 2007
Lucy is Learning. Are The Doctors? February 7, 2007
The Downside of Down, November 20, 2005
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